Beverly, 46, tested positive for HIV eight years ago. The Washington health educator stays abreast of the latest research and is optimistic about the future. Here’s her story.
What was your first sign that something was wrong? What symptoms did you experience?
I didn’t have any symptoms but knew I had put myself at risk. I had been an IV drug user for 16 years and had unprotected sex with someone who tested positive for HIV. I knew in my heart I could be infected but was afraid to be tested. But I knew people who were HIV positive and knew if they could deal with it, so could I. Finally in 1993, I went for testing. I didn’t start to show symptoms of a faltering immune system until 1996, when I developed vaginitis, colds, and sinus infections that were more severe than ever before.
What was the diagnosis experience like?
My doctor had tried to convince me to be tested, but I didn’t want my insurance company to know if I was HIV positive. I went to a clinic that provided anonymous testing. My name was not identified with the results. The woman who gave me the results looked more scared than I was. She gave me the name of a doctor, but I didn’t go. At the time, I was dead set against starting on drugs to treat HIV. My instincts served me well. Now they don’t recommend that early treatment.
What was your initial and then longer-term reaction to the diagnosis?
I was in shock. The positive result didn’t hit me until the next day. I worked as a counselor in a drug-recovery program when I learned the result. A month or two later, changed jobs and began working as a chemical dependency counselor with HIV-positive men. Now I work with an agency that advocates for and trains women and children who are affected by HIV. I like helping people. It’s spiritually uplifting to know that I am making a difference in someone’s health. I stay on the cutting edge. I read everything I can get my hands on. There’s an ever-changing landscape of treatments. I want to avail myself to them and survive as long as possible.
How is your disease treated?
I receive medications through a clinical trial. I recently took a break from the drugs. The drugs have side effects, including a shifting of fat tissue, high blood fats, and cholesterol. But the side effects are mild. I recently developed high blood pressure, probably from the drugs. I also see a primary care physician for