The Tuberous Sclerosis Center
The NYU Comprehensive Epilepsy Center has developed a comprehensive program that provides well-coordinated, multidisciplinary care for individuals with tuberous sclerosis. The Tuberous Sclerosis Center at NYU, organized under the direction of Dr. Daniel Miles and Dr. Orrin Devinsky, strives to work closely and collaboratively with the patient's pediatrician, internist, family practitioner and neurologist to provide the best possible care.
Dr. Miles, the director of the pediatric epilepsy program at the NYU Medical Center, is a board-certified pediatric neurologist with particular interest in the treatment of epilepsy who has worked with children with TS for over a decade. Dr. Devinsky, the director of the NYU Comprehensive Epilepsy Center, is recognized as one of the top adult epileptologists in the country. Together with the eight neurologists, two neurosurgeons, four neuropsychologists, and five nurse practitioners of the epilepsy center, Drs. Devinsky and Miles have joined a dozen other specialists in the areas of child development, cardiology, dermatology, genetics, nephrology, ophthalmology, neuroradiology and psychiatry to guarantee complete care of all aspects of the tuberous sclerosis complex.
The goal of the Tuberous Sclerosis Center at NYU is to assist the patient, the patient's family and the patient's primary care physician in managing the many needs of individuals with TS. The program ensures appropriate and timely follow-up care for patients in all specialty areas. The Tuberous Sclerosis Center is located within the NYU Comprehensive Epilepsy Center at 403 East 34th Street in Manhattan. To learn more about the center or to refer a patient for evaluation, please call (212) 263-8318.
Tuberous Sclerosis Research Articles
The Journal of Child Neurology 2004 Sep;19(9):687-9.
Epilepsy Surgery in Young Children with Tuberous Sclerosis: Results of a Novel Approach
Weiner HL, Ferraris N, LaJoie J, Miles D, Devinsky O.
The Journal of Child Neurology 2004 Nov;19(11):847-52.
Cognitive and Behavioral Correlates of Tuberous Sclerosis Complex.
Zaroff CM, Devinsky O, Miles D, Barr WB.
Parents who would be willing to discuss their child's surgery for Tuberous Sclerosis:
Kyla Burns (daughter Haileigh)
Haileigh's Story: Surgery for a Child affected by Epilepsy and Tuberous Sclerosis, by Linda Viscardis
Alessandra Smeraldi (son Ricardo Maffi)
Ricardo had multiple lesions, one near motor cortex, two separate tumors removed from left temporal and right parietal regions. asmeral@libero.it
Judy and Peter (daughter Hannah)
Hannah’s Story
PLaforte@optonline.net
